Welcome Sophia Hope Bell!!!

Welcome Sophia Hope Bell!!!
Maddy has officially become a big sister!!

Monday, July 2, 2007

Round 6 is complete!

So sorry it's been so long since our last post. Although, like they say...no news is good news! We made it through round 6 without a hitch. Madelyn got sick twice, but that is to be expected, it was a long day and she received 3 of the 4 drugs. We have been keeping pretty busy with work and trying to enjoy the summer. We are scheduled to have round 7 on July 17th, as long as her counts are back up. My brother, Ronnie and his girlfriend Liz are coming down from NY this weekend. We are VERY excited. They haven't seen Madelyn since her biopsy in Dec...wow are they in for a surprise!!!

Madelyn has 2 shiney white teeth on the bottom front. She is cutting one or two on the top now. She has some new words...baby, eye (she will point at your eye too), watey (we think this is water, she kept saying it at the lake this weekend). She hasn't crawled or walked yet. She really, really doesn't like being on her belly long enough to learn to crawl. She will get up on all fours, and if you are distracting her enough so she doesn't realize that she is on her belly she is okay, but as soon as she realizes it, she squeals at the top of her lungs!

Everytime we go to the clinic and Madelyn has chemo or labwork or anything done, they give us coupons. This is for the kids to buy toys or games or things with. I wasn't really sure what I was supposed to do w/them, b/c believe me when I say we don't need anymore toys. The Child Life Specialist came up to me on Tuesday and noted that I hadn't cashed them in. So we cashed them in and got $60 worth of gift cards to Target. I went on Wednesday and Madelyn bought herself a Radio Flyer wagon and it is cool. It has to flip up seats in it w/seatbelts and drink holders that she loves to ride around our neighborhood in. We gave our friend Carsen a ride in it the other day and they had a blast!!!
We found out at the clinic last week, that Madelyn qualifies for a wish through the Make-A-Wish Foundation. She has to be 2 1/2 - 3 years old before they can give her her wish. So...we are very excited about that! Also, they told us about the Journey Beads. They gave us a list of all of the different things that the patients get beads for (i.e. finger sticks, biopsy, diagnosis, MRI, etc). I have to go through my calendar and see how many of each that she will get...believe me, it will be alot and then we put it on a string w/her name and it starts w/the diagnosis bead and continues on until we are NED (no evidence of disease). Then, she can take it to school someday and tell everyone in show and tell the journey she has been on!!

Notice a new link to the right...Keria Grace. This is our brave little friend in Texas who is facing surgery on Thursday to remove the Neuroblastoma tumor in her chest just like Madelyn. Please pray for her and her family that they all remain strong and brave through what is ahead of them.

Please continue to pray that all of Madelyn's tumors shrink enough so that we do not have to have surgery when chemo is over!! Thank you all for your continued support, prayers and kind words.

We love you all,
The Bells


Anonymous said...

Hey guys. I know it has been awhile since we have left you a comment, I apologize for that. We think of you guys every day and pray for Madelyn. Don't ever think we are not thinking about you guys. Let me tell you, that she is so cute that I could eat her up. She looks like both of you, but I hate to say Shelia, she sure does look alot like her daddy. Anyways, she is the cutest thing. Just love her and we have never met her. Take care and we are always thinking of you guys. Love Cheryl & Tim

Anonymous said...

Sheila, hi. We will continue to lift each of you up in prayer.Remember that God has his hand in this and as you journey forward,he will contnue to guide you through. Have a safe and fun 4th. and I will see you at the office. Glad your at midtown! Cameron

Gail said...

hiya! I am a friend of Auntie Tina's. I follow your daughters progress religiously. She is in my thoughts and prayers daily. First, thing I do is sign on and check on here for updates. Madelyn is a beautiful little baby. Its utterly shocks me how a child can bring about such caring and compassion. I personally have not been touched by NB, but being a friend of Tinas the passion for the children is so contagious.

Anonymous said...

Oh my, that is an awesome picture! I love it! I'm glad you had so much fun with you sweet girl. I know I don't post much but I hope you know I check this blog weekly so I can keep tabs on Madelyn.
All our love,
Sara, Alex & Emily Gray

NB Warrior said...

Just wanted to stop by and say that I still check in on you guys. =) Glad to hear that things are going okay, and I love the picture of Madelyn on the lake. I also really like that Journey Beads thing. I wish they would have had something like that when Isabella was going through treatment. It will definitely be a treat to look back on when she's older.

Have a great week!

Michelle said...

Hello Bell Family,

I found your website on another neuroblastoma site. I am a Horner's Syndrome and Neuroblastoma mom too. I know we have never met but we have so much in common regarding our baby daughters. The statistics for Horner's and Neuroblastoma is 2% and our daughter's fall into this statistic. My daughter was diagnosed on 3/30 for Horner's and 4/17/2007 for Neuroblastoma and nothing has been the same since. I have read Madelyn's journal and I know she is going to beat this terrible beast that grows inside both of our babies. I will pray for Madelyn and keep checking for updates.
My baby Mackenzie's web site is www.caringbridge.org/visit/mackenzielanae

Best wishes,

Anonymous said...

hey madelyn!
this is sissy and i have had the joy of being by your side everyday for the past few weeks. I have been there for your last round and i was there when you said sissy :] your so amazing and no matter how much you look up to me i will always look up to you more. your an angel.you give me something to look at and say WOW that child looks just like me when i was a baby :] lucky!! your beautiful and tough and thats makes you a Bell.
You came into this world 10 months ago(happpy 10 month) and that moment has moved so many people. stick with it girl. I LOVE YOU!!!

<3 Kaitlyn (Sissy)